Lene Cividanes serves as Head of Division for the Danish National Genome Center and The Danish Health Data Access Body at the Danish Health Data Authority. With a background in political science and more than 15 years of experience in research and health data policy, Lene is a leading voice in advancing the framework for developing and implementing personalised medicine in Denmark.

Since joining the Danish National Genome Center in its early stages, Lene has played a central role in establishing Denmark’s national infrastructure for genomics and connecting the infrastructure with the national ecosystem for secondary use of health care data. Together with her team she has been particularly engaged in developing inclusive governance models that support public trust, democratic legitimacy, cross-sectoral coordination and stakeholder engagement at multiple levels nationally and internationally as well as ensuring sustainable financing. She has also been deeply involved in the establishment of research services and betrothed the development of the ethical and regulatory frameworks around genomics. 

Lene’s engagement is guided by a broader aim to support the development of sustainable, people centered and internationally connected genomics repository and health data ecosystems for the benefit of the patients.

The story of the Danish National Genome Center